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2014 in review
The WordPress.com stats helper monkeys prepared a 2014 annual report for my blog. Although I’m no where near as popular and well read (nor prolific) as some of my fellow spoonie bloggers yet (I’m...
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January is Thyroid Awareness Month
Thyroid Awareness Month January is Thyroid Awareness month, and I bring this to your attention at this late date because virtually everyone with any form of Ehlers-Danlos Syndrome seems to also show...
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Flares happen
My napping partner This post is brought to you by Peanut, my faithful therapy rattie and napping partner as I find myself going splat a lot more with my 2nd worst flare since my initial 2012 onset...
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Fatigue and EDS
Chief Napping Officer, Peanut Those who have any form of Ehlers-Danlos Syndrome (EDS) like me (with HEDS) can tell you there is definitely some fatigue involved from the strain on weak muscles, torn...
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5 Things You Should Know About Chronic Pain
Jan Groh:I’m slowly cooking up my own “Pain and EDS” post, but meanwhile, I felt this one by fellow blogger and sufferer Zyp Czyk worth sharing sooner than later. Originally posted on EDS Info...
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MCAD linked to Autism Spectrum April 2015
Have we found a major cause of Autism finally? I’m late to the World Autism Awareness Day party which was yesterday, April 2, 2015 as I type this. (Though not late for Autism Awareness Month, which is...
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Our Stories of Strength coming out May 2015
Writing as inspiration… (Alan Cleaver cc license) I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With...
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When Else to Suspect Ehlers-Danlos Syndrome
Bendy signs of EDS I wrote about my top five ways to suspect Ehlers-Danlos Syndrome over a year ago. These included: Fibromyalgia IBS Chronic Pain Anxiety, depression and Autism Spectrum Disorders...
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Introduction to MCAD June 2015
A granule-filled mast cell As the current coordinator for the PNW Chapter of The Mastocytosis Society covering the greater Pacific Northwestern region of the US plus a few neighboring Canadians, I’ve...
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Birds of a Feather
Fancy meeting you here… Birds of a feather flock together. And although we like to call ourselves medical “zebras”, for the purposes of this discussion I’m calling us birds to honor the age-old adage....
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You Know You Have Ehlers-Danlos Syndrome When
… you haven’t fallen, but you still can’t get up.
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Trust – and heal – your gut!
You may have noticed I don’t give much dietary advice here. In fact, to this point, I’ve given virtually none. And this is for a very good reason: just like medications and just about everything else...
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Depression and EDS and MCAD
Finding answers? I really need to include anxiety in this post as well, as the two – depression and anxiety – seem to go very hand-in-hand for a large number of us. No surprise, this is true for the...
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The Chronic Constellation
Fasten your seatbelts and settle in with a snack again, you’re in for another long ride, smile. (I’ll try not to make it too bumpy!) Hopefully you’ve heard of “The Trifecta” by now – that is, the...
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Autism and EDS
Is it a zebra or what? April is Autism Awareness Month and I actually started this post a year ago, in April of 2015 after sharing Dr. Theoharides’ exciting discovery connecting MCAD to Autism that I...
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Heads up change is coming May 2016
Heads up caveat May 13, 2016: I expect a good portion of the educational information I provide on several of my pages here to change after the results of the discussions of all forms of Ehlers-Danlos...
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Anxiety and EDS
The anxiety driven brain I’m writing this post while listening to the replay of The Anxiety Summit produced by Food and Mood Gal Trudy Scott this week (June 16, 2016). And I am not surprised to find...
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50,000 Shades of Grey
Sorry to disappoint you erotica fans, but this post is not going to be nearly as sexy as the recently viral romance novel whose title it is reminiscent of. But I hope having lured you in, it will keep...
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Finding Your MCAD Triggers
Life-long MCAD detective As many of you know, we’re unfortunately finding Mast Cell Activation Diseases aka “MCAD” of all kinds (forms of masto or the newly recognized MCAS) to be relatively common in...
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What is Normal
Are we semi-common “zebroids” after all? I know, “what is normal” is a really loaded question or statement, but I’m not intending it to be. I’m just trying to help highlight how many ways we have...
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